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History of Research & Prevention

    A Decade of Action & Advocacy

     A second grant is given to Children's Hospital, Oakland Research Institute to study the mechanism of Fetal Alcohol Syndrome in mice;
    -  Staff and Prevention Committee members sit on a Centers for Disease Control (CDC) advisory board to plan a national conference on Fetal Alcohol Syndrome.

    A grant is awarded to Tod Children's Hospital, Youngstown, Ohio, to study the effects of dietary lipids on Fetal Alcohol Syndrome;
    -  Support for research into aging and mental retardation is initiated;
    -  Staff and members of the Prevention Committee sit on a CDC committee planning a conference on prevention of primary disabilities and secondary conditions;

    A grant is given to the Waisman Center, Madison, Wisc., for a study on the "Localization of Genes Responsible for Non-Specific X-Linked Mental Retardation in Two Families.";
    -  The Board of Directors identifies the prevention of Fetal Alcohol Syndrome as one of its three objectives for the Strategic Plan;
    -  Work begins and is completed in 1993 on HIV publications;
    -  An FAS Kit is developed for use during Alcohol and Other Drug-Related Birth Defects Awareness Week.

    The annual Research Luncheon at national convention is changed to include prevention;
    -  The Arc Summit on Fetal Alcohol Syndrome is held in Baltimore with support received by The Arc of Maryland from the USDHHS, Office of Substance Abuse Prevention;
    -  Take Care of Yourself is revised and distributed.

    Case Western Reserve University receives a grant to study "Fatty Acid Ethyl Ester Synthase: Biomarker for Fetal Alcohol Effects." The results of this research have been the development of a newborn-screening test to identify pre-natal use of alcohol that has been named The Arc Test;
    -  The Arc receives a grant from the Centers for Disease Control and Prevention to support the development and dissemination of The Fetal Alcohol Syndrome Resource and Materials Guide;
    -  Campaign to Prevent FAS Through the Posting of Warning Signs and Educating Self-Advocates about FAS Prevention are developed. Media campaign materials developed included PSAs on FAS, ad slicks for newspapers, magazines, milk cartons, grocery sacks, poster slick and billboard;

    A grant is given to Purdue University to conduct a project titled, "Ethanol and the Formation of Brain Circuits" that investigated whether alcohol selectively damages the formation of connections within the developing brain;
    -  The Arc receives a grant from the U.S. Department of Energy to implement a project to educate The Arc community about the ethical, legal, and social implications of the Human Genome Project;
    -  At the committee's request, the Board of Directors renames the Prevention Committee to the Health Promotion and Disabilities Prevention Committee (HPDP);

    Research grant, "Can Tyrosine Supplemental Prevent Cognitive Deficits in Children Treated for PKU" is funded;
    -  The Arc initiates the Peter Leibert Community Prevention Action Award with the first recipient going to Peter Leibert at the Research and Prevention Luncheon;
    -  The HPDP Committee completes a survey of all chapters to assess prevention activities;
    -  The Arc passes a resolution to object to the House of Seagram's TV advertising; 
    -   A new publication, Genetic Issues in Mental Retardation, is initiated as part of The Arc's Human Genome Project. Two volumes are developed and distributed: Genetic Causes of Mental Retardation, and Facts about Genetic Discrimination.

    The Arc funds a new position: the Health Promotion and Disability Prevention Specialist;
    -  The Arc passes a resolution on genetic discrimination;

    The Godfrey Oakley Prevention Fund is initiated with a generous founding contribution by Preventionist Extraordinaire, Peter Leibert;
    -  Gene Therapy and Mental Retardation, part of the Genetics Issues in Mental Retardation series, is published;
    -  The Fetal Alcohol Syndrome Prevention and Education Act is passed with advocacy from The Arc. The law specifies that a national advisory board be established, and The Arc is included in the list of agencies that must be represented on the board;
    -  The HPDP Committee participates in the development of Year 2010 Health Objectives;
    -  The HPDP Committee provides technical assistance to the National Institute of Occupation and Health Safety in a survey to determine health risks in sheltered workshops.

    -  The Arc lends its name to a community education campaign on prevention of Hib Disease. Cooney Waters donates $5,000 to The Arc, which the Board contributes to the Godfrey Oakley Prevention Fund;
    -  The Arc receives a grant from the CDC to update Fetal Alcohol Syndrome materials.


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