State of Caregiving in the I/DD Community

    In 2017, The Arc launched the Family & Individual Needs for Disability Supports (FINDS) survey, to assess the state of caregivers of individuals with intellectual and developmental disabilities (I/DD) in the United States. The survey, conducted by The University of Minnesota’s Institute on Community Integration in collaboration with The Arc, and resulting Community Report, shed light on the experiences of families who provide supports to a family member with I/DD, and is a follow up to the first FINDS survey, conducted in 2010 and released in 2011.

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    To view the 2017 FINDS Report in full screen mode, click the "Click to read" button on the the report below.


    FINDS Community Report Data Tables

    View the FINDS Community Report Data Tables to get a more robust analysis of the data collected throughout the study.

    About the FINDS Survey

    The FINDS survey was implemented primarily using an on-line survey between January and March of 2017. The survey was also made available in English and Spanish paper versions. Caregivers who were family members or friends of people with I/DD and who provided support were invited to participate in this survey. Direct support professionals or other caregivers whose primary relationship with individuals with I/DD was in a paid role were not included in the sample.

    More than 3,000 people (3,398) met the criteria to be included in the survey and consented to partici­pate. Caregivers were surveyed including respondents from all 50 states, DC, Puerto Rico, and Guam. The number of people responding was large and provides important information about the experiences and outcomes of family caregivers of individuals with I/DD in the United States. However, the sample is not reflective of the racial and economic diversity of the United States.

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    More about FINDS

    More about Intellectual Disability

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